Monday, 12 May 2014

Disney shit happened! The end of the first chapter.

I'm writing this as I wait to see one of my oncologists to review my blood work. Hopefully, my PSA has dropped and that my white and red blood cell counts are good because I'm looking forward to chemo on Wednesday. I have an hour or so before I see him which is giving me some time to write and reflect on our season which ended yesterday.

December 5th seems so far away and that's a good thing because it was the darkest day of my life this far but it also shows how far I've come since my initial diagnosis. Instead of quitting and taking leave from some of the things which make me happy, with a not so gentle push from my wife, I took my life back and have kept doing everything I enjoy. At the top of that list is coaching and this year has been like no other. 

My eleven players are all in grade ten and eleven which means they're only 15 or 16 years old. They've seen their coach quit, come back, change physically and coach through bad days and good days yet they never wavered. In seven months they never quit, checked out or rebelled, they just played and practiced. Every day of this season I knew there were eleven people who had my back and likewise I was there for them. It's been special that with all the chaos of dealing with cancer I could go into the gym three days a week and forget about it and teach, push, develop relationships and improve a group of amazing people.

Months ago, when I first let the news out about my diagnosis it was also the day of our first game against Brampton and with cancer at the forefront someone told me after winning, we had some "Disney shit going on!"  They were right this season has felt a lot like something out of a Disney movie. 

A little bit about this team to put it all into perspective. We have eleven players of which 3 don't play for a school team, 3 play for their JV team, 1 just started playing organized basketball, 1 came back only 7 months after tearing her ACL and 3 come from a small school. All of that means nothing because they work hard, are quick learners, want to win, are unselfish and were pretty good players who were just overlooked in some cases.  Most importantly, they cared about each other and what they needed to do to win. 

I wasn't sure of our level at the beginning of the year so we played very defensively and let the opposition dictate how the game would be played. By mid season this style of play had us playing low scoring games, losing slightly more than we won and squeaking out wins against some weak teams. After a disappointing showing in Toronto we changed our style and began to attack and pressure everyone we faced. The players loved it and played like a totally different team. Practices became harder and more intense but the players kept working hard and improving. We went 4 and 1 in our last tournament before the provincial championships only losing to the #2 team in the province. 

We travelled to Sudbury this past weekend for the provincial championships. We earned the top seed in second division meaning we were #9 in Ontario. Ten minutes into our first game and we lost our starting center. Other players stepped up and some starters played a new position but we won that night and won the next morning. We were now in the semi-finals facing a Mississauga team we were 0-3 against this season as one player seemed to have our number. Twenty minutes before the game and I decided to teach the box and one defense to the team on a chalkboard. I gave one player, who I have come to trust on defense more than anyone else, the task to guard the star player. The reaction didn't go as I hoped.

E: I can't take her.
Me: You're F#€%ing quitting on us! That's bull?¥£%. Can you take her or do I get someone
        else?
E: I'll do it.

She took her and held her to one basket while scoring 25 points herself. That's why I love coaching. There's no better feeling than seeing someone do something they didn't realize they had in them. I don't think she'll back down from a challenge like that again. Correction, I know she'll never back down ever again! Due in part to her great game we beat them for the first time and made the Ontario Provincial Championship game.

After the game the players and their parents got a meeting room at the hotel so we could all get together. When I walked in and sat down the players surrounded me and one player gave a speech about what the season meant to the team. I kept from getting choked up but it meant so much to me. After the semi final win one player came up and said "thanks for coaching us". This team has become a family to my family. 

We played Dundas in the final which is a pretty strong team and I don't think people outside of our team thought we had a chance. We played hard but every time we got a lead they came back and went up. We were down by 4 with 4 minutes to go which felt insurmountable with two of our best players out of the game. One girl came off the bench and played almost the entire 4th quarter without a rest and played great defense. The girls never gave up on themselves and seemed more relaxed as the game got tighter. We went on a run to take the lead due to a three pointer and a pair of free throws by our best scorers. We never lost the lead and with 3.4 seconds left Dundas couldn't get it up the court in time for a good shot.

Watching the girls pile on each other and eventually on me it hit me how special this season has been. No matter how hard I was on these girls they never quit or gave attitude. There were so many times during practice they'd show me how much they cared about me and my health. That's family, when you are concerned about others as much or more than about yourself. The emphasis on family was the reason at mid season we changed our cheer from our team name, Briers, to "together". I wanted us to always think about the group and nothing else. 

Climbing up the ladder to take my turn cutting down the net felt unbelievable. Five months earlier I was quitting coaching because as a cancer patient I couldn't live a normal life anymore. Thanks Carolyn, Rebecca, Sitarski, Cheese, Derks, Cesar, Emily, Madia, Sherm, Chang, Lemmon, Mc, and Kelsey for kicking my butt just as much as I kicked yours.

"I love you guys." Coach Byrne, Disney Shit (2014)

#shitkickcancer 

Saturday, 10 May 2014

Cancer, ugh!: Journey, and I'm not talking about that Steve Perr...

Cancer, ugh!: Journey, and I'm not talking about that Steve Perr...: Player A: Coach, you didn't like us at the beginning, did you? Me: I don't like anyone at the beginning of the year.  My wife ...

Journey, and I'm not talking about that Steve Perry band!

Player A: Coach, you didn't like us at the beginning, did you?
Me: I don't like anyone at the beginning of the year. 

My wife has always dogged me about rushing to get to my destination, finish my projects or complete anything I've been tasked with. I never look around and enjoy the process but push through trying to get to the end of whatever I'm doing. Cancer has been a bit of a blessing as it's forced me to slow down and take everything in as I want to enjoy everything because quite frankly, I have no idea how much time I have left. I'm not packng it in but the reality is the cancer is aggressive, wasn't caught early and there's no treatment plan that's tried and true for people my age.* That's why I focus on process and not the final result. I want to take in and enjoy every second like savoring a nice glass of whiskey or a nice breeze.

The first thing I've taken in is how many people around me are really caring people and are bending over backwards giving me support. You'll never know how much this means to me! Whenever I'm down I read your messages again and again and they make me feel stronger or give me a good laugh. The offers of help, advice and hosting have blown me away. I've always been a guy who gets pretty emotional just ask anyone who's played for me. A close win over a tough opponent or an end of season win and I'm likely to start turning red eyed. 

Yesterday, I found out a group of people were getting together to have a fundraiser for me led by Erica C.! Once again, I'm tearing up as I write this. Damnit! I left Newfoundland, HOME, fifteen years ago and the notion anyone would do something like that means so much to me that it makes me want to beat cancer just so I can have more years knowing and meeting people like that. Cancer has made me take notice of all the people we meet and how when things are rough they step up and step up in a big way. In times of darkness the people who reach out might surprise you and the ones who are nowhere to be found will probably shock you. The friends I never hear from doesn't bother me for a second as this lesson called cancer has taught me to focus on the positive. Shocking!! Positive Paul is back and he's smiling like a pair of Mormons knocking on your door!

Practices have been a little more special this year as I've tried to enjoy every second of them. I've gotten to know the players as well as any team I've had in the past. Every drill has been special because I want to enjoy every second of them. Maybe that's been a difference as this is the first team I've ever coached to never go through a down period, get tired of practice or lose their interest for even a day. It's not because I've been easy on them. These players have been pushed, scolded, cursed, yelled at but they've gotten tougher and done the same for me. Side note, these players will never see Montreal Paul dancing on speakers. Sorry, but that's reserved for U19 1999. 

Family. Family. This is the roughest part. I've tried to enjoy every moment with them but it's harder to focus on each and every moment because the thought of leaving them brings on a crying fest and daddy taking a trip to the bathroom so Rebecca doesn't figure out what's going on. I think about them all the time and try to make sure we are planning on lots of family time and trips this summer because right now I feel good but I want to make sure it gets done while I'm still feeling strong. I enjoy the time laying around with my family a little more, they come to all my practices as I want to look over and see them, the quiet time of a cuddle with Rebecca take on a very special meaning for me and projects with Carolyn don't get put off. Ok that's BS! They get put off but I buy the materials sooner. We've had 600 square feet of flooring sitting in our living room for three weeks so who am I kidding. Family makes me focus more on beating this dickhead called cancer! My oncologist telling me we're going for a cure gives me optimism and hope for many more years with them. 

I no longer rush to get where I'm going but to enjoy every step. Clarence Sutton, one of the best coaches and people I've ever met, had a team use "every journey begins with a single step" one season as their motto. I've always liked it but I'm trying to enjoy every single step despite the fact this journey of mine began with a step into a huge pile of dog poop! When I say dog poop, I'm talking about a dog that are ten tacos kind of poop! Take the time to look around today and just enjoy the company you're with, listen a little closer to what people are saying, look around and take in the scenery while you're driving, exchange insurance information with the other driver of the car you just rear ended because you listened to my previous advice but most of all enjoy the positive stuff because the negative takes away from all the greatness around us. 

*Not planning on dying anytime soon. 

"Five players functioning on the floor as one single unit: team, team, team - no one more important than the other." Norman Dale, Hooisers

#shitkickcancer


Saturday, 19 April 2014

Cancer, ugh!: Sorry cancer but I'm busy. Just leave a message at...

Cancer, ugh!: Sorry cancer but I'm busy. Just leave a message at...: When I found out I had cancer the first thing I did was quit everything, including coaching for 24 hours. Cancer made me feel like I could d...

Sorry cancer but I'm busy. Just leave a message at the beep!

When I found out I had cancer the first thing I did was quit everything, including coaching for 24 hours. Cancer made me feel like I could do nothing but be 'cancer guy'! Why? Because I kept reading about people who had to step away because of cancer.

Philadelphia Flyers coach, Roger Neilson, took a leave of absence while he fought bone cancer.

A high school coach from Newfoundland stepped away for a year with lymphoma.

NFL coach, Chuck Pagano, had a replacement while he fought leukemia. 

Andy Reid of the Philadelphia Eagles battled the cancer, Terrell Owens, and made it to a Super Bowl. Sorry TO, I'm just kidding. I felt a moment of brevity was needed.

Cancer has caused me to miss a single practice and I have no intention to give it a chance to get in my way of living a happy life. I haven't missed a day of work or time with my family nor do I intend to let it. However, cancer was used as an excuse for leaving Homesense while my wife looked at cushions for an hour. Thanks cancer!

Cancer does not come with a rule book which is both a good and bad thing. How am I supposed to act and what should I do? My sense of humor has been active in the fight and I ask my friends and coworkers to do the same.

Me: My doctor is saying the only thing that could save me is a large order from you.
Customer: It'll be sad to see you go so young.

I feel like to "fit in" I should be looking sad, walking slowly and sitting at home. Screw that! When I go to the cancer centre I always go in with a huge smile and a skip in my step. Cancer will NOT ruin my day. I try to do the same thing on chemo days:

      2:00 Chemotherapy
      5:30 Pickup Rebecca and have dinner
      6:45 U17 Practice
      9:00 Walk dog for half an hour
      10:00 Gym and workout for 90 minutes

I've decided to keep active and do everything I can to be me. That includes being sarcastic, yelling, cursing, coaching, never sitting still, joking, having fun, hanging with family and working. Every now and then I remember I have cancer and I feel a little down but then I shake my head or I get an email or message from someone, often a former player, about something from the past and I laugh, smile or tear up and I'm my regular dickhead self again. Thanks Flynn for the most recent "Paul was a knob story." Yes, I realize I can be a dick from time to time...ok, most of the time.

Cancer has been a great learning experience. I've discovered there are a lot of people who care about me, I might be stronger than I thought, cancer isn't who I am but something I have, teams remain strong even twenty years after you've been together and at Brantford General Hospital they will NOT give you a picture of your testicles during a scrotal ultrasound but if I was pregnant I could have all the pictures I want! Double standard! Also, the technician will look uncomfortable for the duration of your visit after being asked for a picture of the scrotal ultrasound.

We are three weeks away from the end of our season, a season that I have battled cancer every day but I have not allowed it to cause me to miss a game and all but one practice. I've come to believe that I'm going to beat it by focusing on getting through a season at a time because to miss a game or practice because I let cancer beat me would just piss me off! In three weeks I'll be undefeated as a coach fighting cancer, 1-0! See you next season.

"Our Lady of Victory...PRAY FOR US!" Notre Dame Football

#shitkickcancer

Syracuse Men's Basketball, Jim Boeheim, beat prostate cancer just like I plan on doing!

Saturday, 12 April 2014

Cancer, ugh!: Doctors, few are called but many answer.

Cancer, ugh!: Doctors, few are called but many answer.: Doctor Buster: Do you know why we use two fingers? Me: No idea. Doctor B.: It's a second opinion. (Laughing) The signs of my cancer bega...

Doctors, few are called but many answer.

Doctor Buster: Do you know why we use two fingers?
Me: No idea.
Doctor B.: It's a second opinion. (Laughing)

The signs of my cancer began in mid-September with visits to two different doctors and after eight months I've been treated and assessed by eleven doctors. I've now formed the opinion that doctors are like every other job; 10% are great, most are decent at doing the basics of their job and 10% are working in the wrong field. The eleven doctors I've seen fit this opinion with one exception, at Juravinski Cancer Centre I've only run into one doctor who was anything less than great.

The first doctor I saw in September was at a walk-in clinic in Cambridge. I described my abdominal discomfort answered her questions about diet, exercise and when it started. She never examined me physically nor came within 5 feet of me but suggested I ease my diet change slowly as going from an unhealthy diet to a diet high in fruits and vegetables was the likely culprit causing my abdominal pain. Thanks Doc! If you performed a physical exam maybe you might have noticed the 5cm lump that was cancer.

Two weeks later, my second doctor performed a physical exam and didn't like what she felt and rushed a series of tests. After a couple of CT scans, ultrasounds, 31 probing fingers and a biopsy, they found my cancer. One doctor pushed me through without really knowing the cause of the pain while the other wanted answers. How many others will the first doctor miss during her career? My second doctor later disappointed me when she broke the news I had cancer. She said it was likely late stage and to all my questions all she could offer was some sleeping pills to help me sleep. I went home and waited for two weeks knowing there was no hope because she took it from me in her office. However, I'll be eternally grateful to her for following her hunch and pushing for an answer to the cause of my pain.  

The surgical resident at Brantford General needs to learn how to act around patients. While I waited for the surgeon she asked me many questions about my symptoms and family history. I knew where she was going so I asked her about the likelihood of cancer. She smiled and giggled uncomfortably. When I asked her more questions about cancer and treatment she gave me the same uncomfortable smiles and surppessed laughter. If you find yourself so awkward when dealing with a worried patient you may be best suited for a lab, far from ill people.

Dr. N and Dr. Z. At Juravinski Cancer Centre. I was at my most vulnerable when I walked through the doors at Juravinski having spent two weeks waiting with only two things consuming my thoughts, late stage cancer and 'inoperable'. Dr. Z met with us for thirty minutes and seemed to always know what we needed to hear or were afraid to ask. We felt helpless and hopeless but she treated us like we were the only people she was helping and gave us hope and told us they knew cancer and how to treat it. Dr. N came in echoed much of what she said and gave us as much time as we needed, dividing it equally between my wife and I. They understood what a diagnosis like cancer does to a family and they included Carolyn instead of ignoring her. Far from having a God complex they talked of how they wanted to pull in other doctors and come up with the best plan possible. 

Dr. Buster, I can't say enough about this man. I'm glad he came into my battle with cancer. His passion, energy and desire to treat the patient are indescribable. He makes a connection to you like no doctor I've ever met. My cancer is rare for a person my age which is good and bad. It's good because I'm younger and healthier than the typical patient but it's bad because the most common treatments are aimed at keeping old men alive for 5-10 years or so until they die of natural causes. 

Dr. Buster is constantly running my case by his peers and reaching out to other doctors who he thinks might be able to contribute in my fight against cancer. I've received calls from his office in the evening addressing my concerns, stories of success, nutritional help, humor, a constantly evolving treatment plan, focus on Carolyn and her feelings, bringing another oncologist into the fold who is one of the best in Canada, pushing for a cure, having the best nurse I've ever met and making me feel like I'm the only patient he's treating. I wish every doctor could follow his example just like I'd love it if every teacher taught like Mrs. Richard. 

Dr. Buster informed me yesterday my PSA has dropped from 329.8 to 0.21 due to treatment. Cancer is being fought!

Me: I'm writing a blog and you're in it. I don't use your real name. I call you Dr. Buster.
Dr. B: Dr. Buster (shaking his head)? You're getting this next time (Waves 3 fingers).

Fighting cancer is fun! If you like a challenge and want to see what you're made of and how many wonderful people you have in your life then I suggest consulting with your physician about getting cancer. All joking aside, some days you hit rock bottom and can't see ever feeling good again and then you get an email from an old player at just the right moment with just the right words and you're up and ready to fight again! Thanks Kerri. :)

"Son in 35 years of religious study, I have only come up with two hard incontrovertible facts: there is a God, and I'm not Him."
Father Cavanaugh, Rudy (1993)

#shitkickcancer